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　　三九養(yǎng)生堂記者 鄧肯·蓋伊 報(bào)道

精彩|　　主?(zhu)論??(lun)壇??(tan)現(xiàn)??(xian)場??(chang)正??(zheng)式??(shi)發(fā)??(fa)布??(bu)了?(le)由??(you)中??(zhong)國??(guo)罕??(han)見??(jian)病??(bing)聯(lián)?(lian)盟??(meng)牽??(qian)頭??(tou)制?(zhi)定??(ding)的??(de)《中??(zhong)國??(guo)罕??(han)見??(jian)病?(bing)行??(xing)動??(dong)倡??(chang)議??(yi)2030》??。??該??(gai)倡??(chang)議??(yi)是??(shi)社??(she)會??(hui)各??(ge)界??(jie)協(xié)??(xie)同??(tong)推??(tui)進(jìn)??(jin)中??(zhong)國??(guo)特??(te)色??(se)罕?(han)見??(jian)病?(bing)防??(fang)治??(zhi)保??(bao)障??(zhang)方??(fang)案??(an)的??(de)行??(xing)動??(dong)建??(jian)議??(yi)??。倡??(chang)議??(yi)提??(ti)出??(chu)到??(dao)2030年??(nian)??，要??(yao)進(jìn)??(jin)一??(yi)步??(bu)提?(ti)升??(sheng)我??(wo)國?(guo)罕??(han)見??(jian)病??(bing)早??(zao)發(fā)??(fa)現(xiàn)?(xian)、早??(zao)診??(zhen)斷??(duan)、早??(zao)治??(zhi)療??(liao)、有??(you)藥??(yao)用??(yong)、可??(ke)管?(guan)理??(li)、能??(neng)負(fù)??(fu)擔(dān)??(dan)的??(de)水??(shui)平??(ping)??，涵??(han)蓋??(gai)社??(she)會??(hui)關(guān)??(guan)注??(zhu)、防??(fang)控?(kong)篩??(shai)查??(zha)、診??(zhen)療??(liao)服??(fu)務(wù)??(wu)、患??(huan)者??(zhe)康?(kang)復(fù)?(fu)和??(he)政??(zheng)策??(ce)保??(bao)障??(zhang)五?(wu)個??(ge)方?(fang)面??(mian)???！　?(guo)家??(jia)衛(wèi)??(wei)生??(sheng)健??(jian)康??(kang)委??(wei)醫(yī)??(yi)政?(zheng)司?(si)司??(si)長??(chang)焦?(jiao)雅??(ya)輝??(hui)在??(zai)開??(kai)幕??(mu)式??(shi)中??(zhong)介?(jie)紹?(shao)??，國??(guo)家??(jia)衛(wèi)??(wei)生??(sheng)健??(jian)康??(kang)委?(wei)深?(shen)入??(ru)貫??(guan)徹?(che)黨??(dang)中??(zhong)央??(yang)國?(guo)務(wù)??(wu)院??(yuan)決??(jue)策??(ce)部??(bu)署??(shu)??，圍??(wei)繞?(rao)人??(ren)民??(min)群??(qun)眾??(zhong)看??(kan)病??(bing)就??(jiu)醫(yī)??(yi)“急??(ji)難?(nan)愁??(chou)盼??(pan)”的??(de)問??(wen)題?(ti)開??(kai)展??(zhan)一??(yi)系??(xi)列??(lie)工??(gong)作??(zuo)??，推??(tui)動??(dong)提??(ti)升?(sheng)罕??(han)見??(jian)病??(bing)的??(de)管??(guan)理??(li)水??(shui)平??(ping)??。??2023年秘(nian)9月??(yue)??，國??(guo)家??(jia)衛(wèi)??(wei)生??(sheng)健??(jian)康??(kang)委??(wei)聯(lián)??(lian)合??(he)6部??(bu)委??(wei)發(fā)??(fa)布?(bu)《第??(di)二??(er)批??(pi)罕??(han)見??(jian)病??(bing)目??(mu)錄??(lu)》??，罕??(han)見??(jian)病?(bing)目??(mu)錄??(lu)病??(bing)種??(zhong)增??(zeng)加??(jia)至??(zhi)207種??(zhong)；通??(tong)過??(guo)建?(jian)立?(li)診??(zhen)療??(liao)協(xié)??(xie)作??(zuo)網(wǎng)?(wang)、制??(zhi)定??(ding)診??(zhen)療??(liao)規(guī)??(gui)范??(fan)、開??(kai)展??(zhan)醫(yī)?(yi)務(wù)??(wu)人??(ren)員??(yuan)培??(pei)訓(xùn)??(xun)、推??(tui)廣??(guang)多?(duo)學(xué)??(xue)科??(ke)會??(hui)診??(zhen)模??(mo)式??(shi)、建?(jian)立??(li)罕??(han)見??(jian)病??(bing)質(zhì)??(zhi)控??(kong)中?(zhong)心??(xin)、規(guī)??(gui)劃??(hua)國??(guo)家??(jia)罕??(han)見??(jian)病??(bing)醫(yī)?(yi)學(xué)??(xue)中?(zhong)心??(xin)并??(bing)制??(zhi)定??(ding)設(shè)??(she)置??(zhi)標(biāo)??(biao)準(zhǔn)??(zhun)??，全?(quan)面??(mian)健??(jian)全??(quan)罕??(han)見?(jian)病??(bing)診??(zhen)療??(liao)體??(ti)系??(xi)并??(bing)提??(ti)升?(sheng)救??(jiu)治??(zhi)能??(neng)力??(li)；截??(jie)至?(zhi)2023年??(nian)9月??(yue)??，我??(wo)國??(guo)已??(yi)累??(lei)計(jì)??(ji)登??(deng)記?(ji)約??(yue)78萬??(wan)例??(li)罕??(han)見??(jian)病??(bing)病??(bing)例??(li)??，為??(wei)完??(wan)善??(shan)罕?(han)見??(jian)病??(bing)管??(guan)理??(li)制??(zhi)度??(du)提?(ti)供??(gong)了??(le)科??(ke)學(xué)??(xue)依??(yi)據(jù)??(ju)??。

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